Moms are #notsorry their children have Down Syndrome | WDSD19 #ExtraordinaryHuman

Moms are #notsorry their children have Down Syndrome | WDSD19 #ExtraordinaryHuman


When we found out we
were pregnant with Eli, we were ecstatic. I had spent the last week just dreaming of all the things she would be. The vision that we had
and what actually happened were two completely different things. We heard about Emmy’s
diagnosis at about 20 weeks. I was at work, the phone
rang, it was my OB. I answered the phone, they said we have the results of your test. The geneticist, the very
first thing he said was, “I’m so sorry.” So then I
knew what was coming next, and he said, “The baby has Down Syndrome. “I’m really so sorry, I’m really sorry.” she just kept saying that she’s sorry, and I didn’t really know what to say back. And I even asked her if
she’s had any patients that continue on with this
pregnancy, and she said no. So, we can just go upstairs and take care of this right now. She wanted to ask if we decided we wanted to have an abortion. They had told us to prepare
to terminate the pregnancy. I sat down on the
kitchen floor by the sink and just, cried, and tried to
process what I had just heard. I mean, it might as well have
been that my baby just died. It’s scary to think if the
doctor delivers the news and is so sorry, is your
husband gonna be sorry? Are you parents gonna be sorry? Is this gonna be some terrible thing, like it was thought of by the doctors. If I had known then, what I know now, it would be a completely different story. When he was about two months old, he was just coming out of his
second open heart surgery. Nurses going everywhere,
doctors were filling the room, you have all the chest tubes and what not. And how can any child go
through this and survive? One of the main doctors
there, he explained to us, I know this doesn’t look
good, but this kid is a tank. He takes whatever we throw
at him and he keeps rolling. I started keeping a log of all the times I saw Reese change her part of the world, and I had to stop, I
literally couldn’t keep track. They told me that you know, most likely, he won’t ever walk or talk. He’s gonna be turning
five in a couple days, he’s gonna be starting
kindergarten in the fall. He can already count to 15,
he knows all his colors, he knows every single one of his letters. I did not think it would be like this. My son is just so proud of her. They go to the same school
where she’s fully included. My son is a different
person because of her. We are different people because of her. Our lives are not only
good, but they’re better. Everything she does, she works harder for, and we cheer louder. She made our whole family come together in a way that no one else could. There’s magic in that chromosome. As soon as the doctor said,
do you wanna go upstairs and take care of this, that
was the moment I realized, okay, I have to stand up for this baby. I was just determined to
show the world his worth. I didn’t want her to change,
I wanted the world to change. How would you give the diagnosis? I’m here to tell you something,
it might be hard to hear, but listen to everything I have to say. It looks like your baby’s going to be born with Down Syndrome. You may have heard the
words I’m sorry, connected to this diagnosis, and I want you to know that there is absolutely
nothing to be sorry about. I know this may seem
scary, and unexpected, but they show you exactly what you need to see to be strong for them. You are so not alone. There is a giant community
waiting to embrace you, and love you, and your baby. You can just reach out to us, and we will answer any questions you have. Just in case no one said it
already, congratulations. Welcome to the lucky few. There’s going to be
challenges on this journey, just as there would be for any child. But you will not want to trade this for anything in the world.

4 comments

Leave a Reply

Your email address will not be published. Required fields are marked *