Women and Girls with Turner Syndrome

Women and Girls with Turner Syndrome


bjbjA Women and Girls with Turner Syndrome
KRISTA Hi. I m Krista. I have Turner Syndrome. Turners is a genetic condition that affects
only women and girls. SARAH Women and girls with Turners have only have one chromosome
instead of the usual 2. KRISTA And it s called a syndrome because there are more than just
one set of symptoms. Turners shows up differently in all of us. MARY Even though there are things
most of us share are things like needing to take hormone supplements. MAGGIE And many
of us are short. SUSAN and I ve rearranged my kitchen so I can reach almost everything
and I found a car that can adjust to my size. MAGGIE I wear tall shoes to get on the roller
coaster. KRISTA As you can see, we ve learned to make adjustments but there s more – like
infertility. SHIRLEY Turners means I had my son through adoption, the greatest gift my
husband and I have been given. Brigit Others couples consider in vitro fertilization. Maggie
Women and girls with Turners can have other health issues as well. KRISTA Some women have
high blood pressure, anemia, stomach problems or even auto immune issues. But no matter
what the problems are, we all find ways of dealing with those challenges. SUSAN I wear
2 hearing aids so I ask people to look at me when they re speaking to me and that works
just fine. SHIRLEY I have celiac disease so I have to be selective about what I eat. I
have to be careful about all areas of my health, especially since I m older, so I ve learned
to be an advocate for my health. SARAH I had some operations when I was younger and now
I m fine. I lead a pretty normal life. KRISTA But regardless of what our health issues are,
the key to coping successfully is finding a network of support. MARY My mother is a
great encouragement and inspiration to me and my husband in his own way has taught me
a lot. KRYSTA I know I couldn t have accomplished what I have without my family. SHIRLEY The
Turner Syndrome Society keeps us connected with each other and keeps us informed about
the latest scientific breakthroughs. KRISTA Through it all, we ve learned a lot not just
about Turner Syndrome, but about ourselves. MARY That we re capable. KRYSTA Because we
choose to be. SHIRLEY Turners has taught me to be resourceful and even persistent! MAGGIE
That we re tough and we never give up! KRYSTA Turners hasn t held us back! I’m a clinical
educator and a prenatal nurse. MARY I have a masters in cell biology and a career in
bio chemical research – but I m most proud of being a mom to our adopted son and daughter.
SHIRLEY m a teacher and a music director and delighted to have directed choirs in Roy Thompson
and Massey Hall. SARAH I finished 4 years of college in marketing and advertising. I
ll soon have 2 diplomas! MAGGIE m top of my class in math. SARAH Yes, I have Turner Syndrome
and sometimes that does mean challenges, KRISTA But each of has come a long way and each of
us has discovered some important things. SARAH that we won t let our challenges get the better
of us MAGGIE staying informed is vital MARY and that developing skills takes us through
whatever we re facing. SHIRLEY ve learned how strong we can be – and how much we can
accomplish. SHIRLEY ll never let Turners excuse me from living my life to the fullest. MAGGIE
or define who I am. KRISTA With our network of support each of us are creating our own
beautiful lives and despite the difficulties – we can do anything! SARAH t go it alone.
I invite you to join us. hg&] hg&] hV!j :p~7;wP EBU` 5VD GGHPXNT, /M,W m2iU [[v _Xtl
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g9g9o{w g9o{kZc o{kZg9g9s g9g9 g9o{s o{kZo{s Inspired Events Women and Girls with Turner
Syndrome KRISTA Hi. I m Krista. I have Turner Syndrome. Turners is a genetic condition th
SARAH Women and girls with Turners have only have one chromosome instead of the KRISTA
And it s called a syndrome because there are more than just one set of sy MARY Even though
there are things most of us share are things like needing to ta MAGGIE And many of us are
short. SUSAN and I ve rearranged my kitchen so I can reach almost everything and I fo
MAGGIE I wear tall shoes to get on the roller coaster. KRISTA As you can see, we ve learned
to make adjustments but there s more – li SHIRLEY Turners means I had my son through
adoption, the greatest gift my husban Brigit Others couples consider in vitro fertilization.
Maggie Women and girls with Turners can have other health issues as well. KRISTA Some women
have high blood pressure, anemia, stomach problems or even aut SUSAN I wear 2 hearing
aids so I ask people to look at me when they re speaking SHIRLEY I have celiac disease
so I have to be selective about what I eat. I have SARAH I had some operations when I
was younger and now I m fine. I lead a pretty KRISTA But regardless of what our health issues
are, the key to coping successfu MARY My mother is a great encouragement and inspiration to
me and my husband in KRYSTA I know I couldn t have accomplished what I have without my
family. SHIRLEY The Turner Syndrome Society keeps us connected with each other and keeps
KRISTA Through it all, we ve learned a lot not just about Turner Syndrome, but MARY That
we re capable. KRYSTA Because we choose to be. SHIRLEY Turners has taught me to be resourceful
and even persistent! MAGGIE That we re tough and we never give up! KRYSTA Turners hasn
t held us back! I’m a clinical educator and a prenatal nurse MARY I have a masters in
cell biology and a career in bio chemical research – bu SHIRLEY m a teacher and a music
director and delighted to have directed choirs SARAH I finished 4 years of college in marketing
and advertising. I ll soon have MAGGIE m top of my class in math. SARAH Yes, I have Turner
Syndrome and sometimes that does mean challenges, KRISTA But each of has come a long way and
each of us has discovered some impo SARAH that we won t let our challenges get the better
of us MAGGIE staying informed is vital MARY and that developing skills takes us through
whatever we re facing. SHIRLEY ve learned how strong we can be – and how much we can
accomplish. SHIRLEY ll never let Turners excuse me from living my life to the fullest. MAGGIE
or define who I am. KRISTA With our network of support each of us are creating our own
beautiful li SARAH t go it alone. I invite you to join us. Title Headings Microsoft Word
97-2004 Document NB6W Word.Document.8

60 comments

  1. this was grate to watch as it had someone about the same age as me going through the same πŸ™‚ x

  2. hi!!! I have turners, it sucks, i am called cute,(the worst part is you get chubby -_-)I am constantly taking shots. Honestly, I am lucky, I do not have many symtoms, i have a webbed neck, i am not that short, i am (not selfeshly) more attractive than most of these women. But there are some negatives, i am not a normal height, i do have some deformed features. Thanks 4 listenein! -Ani

  3. I hate turners. Its so unfair. Every guy i like runs fir the hills. The worst part is everyone tells you its not that bad. Yeah right.

  4. If guys don't stick around, perhaps it's because they aren't the right guy for you. Concentrate on doing the things you enjoy doing and are good at, and they'll come looking for you.

  5. My long term girlfriend has Turners. It worries me that someday we might not be able to have children, but i'll stick by her side no matter what. I'll feel bad though when we're 40 and I start to get fat and grey and she still looks young and beautiful πŸ˜›

  6. Hi ts sisters !!! i just want to say im also diagnosed with turner syndrome i think the hardest part for me was going thru the injections alone everynight thinking i wasnt normal and i can relate with thinking every guy will run away from me and i also thought my husband one day will be so dissapointed when i tell him i cant have children one day. i just want to say i know now none off that was ever true we are as normal as anybody else no matter what the obsticles . to my *TS BUTTERFLYS*

  7. My lovely woman has t.s. and she is the most magnificent, extraordinary, awe inspiring woman I've ever met. She has helped me with my issues and cares for me like no other. She completes me and is my rock. She truly is a blessing and I cherish her more and more every day. I love her with all I am and all I can muster. She is sunshine, my little ray of joy

  8. Thank you ladies for the wonderful video! I think what you are doing in bringing awareness to Turner Syndrome is amazing and motivational! Best of luck in your journey and future projects!

  9. I dated a girl with turner's syndrome, though I knew about the conditon from a svu episode. The girl who has it is young on the outside but ages faster on the inside. Due to this they have no estrogen and thus need to take estrogen pills to supplant it. Sterlity can also happen as well as heart issues. We grew apart, mostly due to other burdens that were going on between us.

  10. This made me cry! I have T.S and I am now 19. All my life I have been feeling so alone and thought I was the only who has been going through the shots and guys running for the hills. I have never dated anyone and thought that guys didn't think I was beautiful because of my short stature. I'm still single but I know now that's not true. After seeing this video I feel okay with having T.S. I am so glad I found people who understand what I'm going through.

  11. I'm sorry, but this video made me mad in more that one way. Turner syndrome doesn't only mean you have only one X chromosome, it can also mean that just part of one is missing. Also, it sounds TOTALLY staged and for the most part, is boring to watch.

  12. Wrong! Women with Turner Syndrome has only one SEX chromosomes, in total, you would have 45 chromosomes instead of 46 in typical human. If you only have one chromosome, you are unlikely to be human.

  13. If I were to prejudicially make assumptions about people with turners syndrome, I would say they are extremely intelligent, able and productive members of society.Β  They have graduate degrees, contribute more than most people and are not overly tall.Β  Again this is prejudicial as I only know a few people with turners syndrome.

  14. I have a little over 30% mosaic TS. Β That means I have the XO cells in about a third of my tested blood cells, while the rest are chromosomal complete XX cells.
    Mosacism of the XO type can also occur with an XY line, often this results in an entirely outwardly female person, who may have a higher risk for 'ovarian' cancer.
    I'm horribly clever but do have some learning difficulties that require taking a little more time over some things, it's termed as Non-Verbal Learning Disorder…on the flip side, I'll remember verbatim years beyond an occurrence.
    I'm one of them many who're verbally superior with TS.
    I lead an entirely normal life, albeit with many extra Dr appointments, but realistically there isn't any thing I have had to face that isn't possible within the range of the normal human experience of someone with the full chromosomal set.
    Additionally, I have few noticeable characteristics and so have to carry my Karyotype (the paper work of the test I had to show my TS) whenever I go to a new Dr, otherwise they think I'm crazy!
    I have experienced infertility challenges, premature ovarian failure (this is when you go through something like menopause before the age of 42, I had symptoms since I was 18). Β I've also had other lymphatic irregularities and mild liver disease which was brought on circumstantially and is almost entirely resolved now.

  15. I've never met anyone people with turners, just with downΒ syndrome which is that they have an EXTRA choromosome! but people with turners seem pretty normal, very intelligent and happy!Β Β 

  16. 😞I'm Australian and have Turner syndrome the closest City able to treat me is 4 hours away and we have no specific Turner syndrome programs
    I am treating it through growth hormone,blood tests e.c.t but have nobody I can relate to any tips?

  17. I have this… I feel quite confused and upset because I don't really understand why it happened to me because other woman are born normally without this genetic disorder… and some are..Really confused more research really has to go into why this occurs. I live a normal life except not being able to have kids doesn't make me feel very normal… The only hope is that IV treatment that is available for me or adoption..adopting a child and making it feel loved.. idk it hurts sometimes i wish i wasn't born :/

  18. I have turners syndrome, its annoying at times… main issues for me are celiacs and needing to take growth hormones

  19. I hate the problems but I like being creative with art and videos.
    I have rough times but I am happy when I make a friend happy.
    I never gave up and people say I improve my gaols a lot.

  20. I have a Daughter 28yrs old she has Turner Syndrome She never met anyone with the same sumthin as hers i wish there was a cure for this. i think this is why it stop her from haveing a boyfriend. if there is someone out there that knews what she going threw with Turner Syndrome please look her up on facebook Laura Chavez

  21. Watching this video was so inspiring and amazing! I found out I had Turners syndrome when I was 14 and now I am 19 and in college. All this time I thought I was alone! All the struggles you have to deal with mentally and physically. Finally someone understands! Thank you!

  22. I CAME TO KNOW ABT THIS SYNDROME TODAY. GET INSPIRED BY U LADIES. A BIG SALUTE TO YOU, STAY BLESSED AND SPREAD HAPPYNESS. GOD BLESS US ALL.

  23. You guys look relatively normal. I think when in 'childhood' you guys look more abnormal. Somehow you guys grow out of some of the features of Turner's condition. Most likely due to estrogen supplementation.

  24. I too have turner's syndrom i hate this turner' syndrom this always creat problem in my life it really hurts being different from other i am shame of my self i know it will creat problum in my future also bt this is bitter truth of my life

  25. I feel that I was shortchanged in life because of the Syndrome. Sorry. I don't really have any life, friends or can't even get date.

  26. My name is Alexis at time of writing this I'm 34 an I have mosaic ts. Ts affect me any many ways and I try not to let it rule me I would like to connect with other with ts via social media

  27. I have swag salute to all of youπŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

  28. i have also a TS i am 32 years old now filipina and married already i keep on searching about my condition and i'm glad that i found this video i hope we can be friends ..salute guys and God bless you all

  29. Hi, my name is Amy. I live in MN, USA and i wanted to reach out and thank you for all the amazing Turner Syndrome Work you are doing. I was diagnosed at age 9. your videos are so comforting and amazing! i really enjoy what you say and how you word things in an easy to understand and comforting way !! keep up all your good work ! xoxoxox ! stay awesome ! I also have a Youtube Channel if you could check it out that would mean so much to me. I am also very pationate about educating about Turner Syndrome. Thank you again for all you do !

    https://www.youtube.com/channel/UCeiNi6GXmgSC6FexzIsv54g/videos?view_as=subscriber

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